DFN is collaborating closely with CureDRPLA
CureDRPLA is a US based non-profit organization founded by Paul and Andrea Compton. Paul and Andrea have a son that was diagnosed with DRPLA in August 2018.
The mission of CureDRPLA is to connect families, physicians and scientific investigators to further DRPLA research and work towards a treatment for DRPLA.
CureDRPLA has funded more than $7 million in research projects and activities aimed at advancing the organization’s mission. A summary of their latest work can be found here – hyperlink 5-year impact report.
Since DRPLA is more prevalent in Japan, CureDRPLA has made it a priority to build connections with the Japanese scientific and clinical community. Junko Shiozawa, Advisory Board Member for CureDRPLA, has played a key role in building a community of Japanese individuals affected by DRPLA and their families. To formalize her work and expand the impact of such initiatives in Japan, Junko has created the DRPLA Family Network (DFN).
CureDRPLA and DFN have strong ties, continue to work together, and will collaborate as needed to fulfill our missions.
Anyone with DRPLA or caregivers of individuals with DRPLA who do not speak Japanese are encouraged to contact CureDRPLA for support and information about research projects.
On the CureDRPLA website, you can find more information and you can also contact the team by email at [email protected].
